- When you are diagnosed with a chronic medical condition, don't fight it. You don't have to like it, but life is so much easier when you accept it.
- Educating people on your condition can be frustrating. This has almost taught me to be patient with others.
- Before we were diagnosed with our “chronic condition”, the life we lived in became a blur. We rushed from here to there, and back again; worked endlessly at our career for more money and to give us a feeling of self worth; were to busy to listen (really listen) to our loved ones. (I am saying this based on my life – yours may be different). And now, for me:
- I literally stop to smell the flowers, or to notice the red berries on the bare branches.
- When I look out the window and see a Cardinal, I run for the binoculars to get a better look, and feel a great joy within my soul for having seen this beautiful creature.
- When I am in a moderately bad flare, and spend a lot of time in bed, my family knows they are more than welcome to come and sit with me – on the bed – even the kids friends. I may be barely able to smile, or contribute to the conversation, but I listen to them, really listen, and it is a great feeling for all of us. Even if we just sit in silence.
- I try to be nicer to my husband and appreciate all that he does, his help and understanding (finally), his carting the kids, even though he is tired from work; but I go back to the days when first met, and remember why I fell in love with him, and I am falling in love all over again.
- I try to be mindful every day, every moment (doesn’t always happen!! :) ) More on being mindful another time. But a good example my counselor gave me was, when I was working, he said when your phone rings, before you answer it, “stop”, “take a breath”, “answer phone” - you have then put yourself “in the moment, and mindful of answering the phone.
4. I have learned to accept (not always) that I can't do all the things I used to be able to do. I used to be a “Type A” personality; very organized, logistically inclined on getting things done in the most efficient way, keeping track of just about everything at work and at home. (P.S. I have ADHD). After work, and after taking care of the family and kids were settled, my time was spent on my latest interest – usually till 11:00 / 12:00 at night. Since I've had Fibromyalgia, I am no longer that person. And it is “OK”. I am still the same caring person, who would like to be able to do all of the above, but I have learned to limit myself, and use my energy accordingly by focusing on the most important things. Most of the time, I can accept this; sometimes I cannot accept it – and that's “OK” to. All part of being mindful.
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